Case study
equity and inclusion, ethics and governance, quality practice, partnership working

The CoREN: bridging the gap between research and communities

updated on 20 Dec 2024
6 minutes

The Community Research and Engagement Network (CoREN) aims to advance participatory approaches within health and social care research by increasing collaboration. 

A case study from Steven Dodd, Research Associate at Lancaster University.

Groups of delegates in discussion, standing in small groups around round tables with notebooks on, in a conference hall

The Community Research and Engagement Network (CoREN) was created to facilitate participatory health and social care research by connecting communities, researchers, and public sector practitioners. Spanning a diverse region from South Cumbria to Cheshire, the CoREN places a particular emphasis on fuelling research collaborations involving voluntary, community, faith, and social enterprise (VCFSE) groups. 

Unlike short-term, project-specific co-production initiatives, the CoREN is intended as a sustainable and lasting foundation for building research relationships. Its leadership group - comprising representatives from VCFSE organisations, researchers, and public advisers - reflects its commitment to participatory principles, with the group playing a key role in decision-making over the CoREN’s strategic direction. 

This case study draws on a recent evaluation of CoREN, exploring the factors behind its successes, and offering lessons applicable to other co-production initiatives.

Purpose

The CoREN’s purpose is to tackle health and social care inequalities in North West England. Its overarching goal is to create a sustainable platform that bridges the gaps between communities, VCFSE organisations, researchers, and practitioners, and enabling equitable collaboration on health and social care research. 

It aims to identify community priorities for research, promote research literacy, and empower community members and VCFSE organisations to influence the research agenda. The CoREN’s creation was motivated by the need for a more participatory approach to research, recognising that traditional models often exclude marginalised communities and perpetuate inequities. 

Approach

At the heart of the CoREN’s mission is its commitment to fostering collaboration, mutual learning, and inclusion in research. It aims to promote open dialogue, equitable participation, and reciprocal learning between researchers, community members, and practitioners. This entails engaging marginalised groups in the research process to maximise equity and diversity in the collaborations it facilitates.

Evaluation

A recent evaluation of the CoREN, conducted between November 2023 and March 2024, used a mixed-methods approach to explore its role, impact, and areas for improvement. Data from 48 participants, including leadership group members, researchers, and community representatives, were collected through online surveys, interviews, and focus groups. 

Evaluation findings explore the CoREN’s success in bridging gaps between diverse groups and promoting broad participation.

Conduit for Collaboration

A key finding of the evaluation was the success of the CoREN's role as a catalyst for collaboration. Participants in the evaluation frequently discussed this, describing the CoREN as a “conduit for collaboration”.

An example of this is the CoREN's ‘collaboration cafés’, where community members, researchers, and practitioners come together to share insights, discuss research priorities, collaboratively develop research projects, and build relationships. 

Empowerment and Mutual Learning

The CoREN promotes an equitable basis for collaboration, with initiatives like collaborative mentoring, where researchers and community members exchange ideas and take turns as mentor and mentee. This equips community representatives with the skills, confidence, and knowledge to take an active role in shaping research. Researchers gain confidence and develop skills in collaborating effectively with communities.

This power-sharing model seeks to promote reciprocal exchanges of information instead of traditional, hierarchical researcher-participant relationships, with community representatives seen as equal partners in research, rather than as passive participants.

Growing Networks

The CoREN’s bridging, intermediary role, leads to a growing network which is itself a draw for new collaborators. This provides an attractive platform for prospective members. Through its growing network, the CoREN can provide an excellent signposting resource for researchers seeking community input, or for practitioners or community representatives wishing to raise the profile of an issue. 

Connecting Communities

This signposting function of the CoREN is particularly important in its efforts to connect underrepresented communities with researchers. For example, evaluation participants pointed out the success in connecting researchers with marginalised populations such as Traveller, Gypsy, and Roma communities. 

These communities may not have the trust to engage with researchers independently, but through the CoREN’s intermediary role, they are given space to share their experiences and to contribute their perspectives to the development of emerging research ideas. 

Participants in the evaluation pointed out that these connections not only serve the interests of the communities involved but also address blind spots in academic research, which is often shaped by less diverse perspectives.

Lessons Learned

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Decentralise Leadership

The CoREN has implemented an innovative model of decentralised leadership, building capacity within communities to take on leadership roles. This reduces dependency on a few individuals and also ensures that the network remains resilient and adaptable.

Clear Communication

One of the most important lessons the CoREN has learned is the value of clear communication. Explaining its decentralised structure is not straightforward and simplifying messaging and reducing jargon can make its role and structure more comprehensible to communities and researchers alike.

In addition, dispensing with jargon and alienating language is needed to attract participants who might otherwise feel research is “not for them.”

Geographical Inclusivity

Geographical inclusivity also requires effort. Ensuring that events and initiatives are distributed across the region can help engage underrepresented communities and make the network more inclusive, as can offering hybrid options to help those who might struggle to attend traditional meetings.

Community-Led Priorities

An appetite for still greater levels of co-production was evident in the evaluation data, particularly from representatives of community organisations who expressed a desire for more “community originating” research projects.

Legacy

The CoREN’s most enduring legacy may lie in the relationships it has helped to build, which last well beyond the life cycle of individual research projects and have the potential to inform many more in future. Acting as an intermediary, the CoREN has facilitated partnership synergies*, where the combined resources and perspectives of multiple partners lead to outcomes that none could achieve alone. 

This was apparent in evaluation data which highlighted the unexpected connections and opportunities that emerged through the CoREN’s work, with one researcher comparing it to “planting seeds and watching the oak tree grow.” This metaphor captures the long-term, facilitative and generative nature of CoREN’s impact, offering a powerful model for others wishing to achieve co-production through decentralised and non-hierarchical organisational structures. Its example to others also lies in promoting a norm of community involvement throughout the research process, contributing to cultural shifts in the region and sector by encouraging participatory research as standard practice.

Despite these achievements, the CoREN’s work is far from finished. In a climate in which non-participatory research practices are still the default approach, the CoREN’s progress in maximising its geographical and cultural reach, communicating its decentralised organisational structure, and continuing to push for deeper community involvement in all stages of research will be critical to the advancement of the co-production agenda in North West England.

This case study is supported by the National Institute for Health Research Applied Research Collaboration North West Coast (ARC NWC). The views expressed in this publication are those of the author and not necessarily those of the National Institute for Health Research or the Department of Health and Social Care.

*Jagosh, J., Bush, P.L., Salsberg, J., Macaulay, A.C., Greenhalgh, T., Wong, G., Cargo, M., Green, L.W., Herbert, C.P. and Pluye, P., 2015. A realist evaluation of community-based participatory research: partnership synergy, trust building and related ripple effects. BMC public health, 15(1), pp.1-11.